I quietly shared an announcement of baby #5 in this blog post. We’ve since received some hard news regarding our baby and we want to share what we know with you.
2022 –
NOVEMBER:
Thanksgiving Day arrived, and for an entire week, we had been holding close the gift of new life inside my womb. A few months prior, when one monthly cycle ended without a positive pregnancy test, I felt a spark of sadness. In the second month, my sadness came with a quivering heart. A few days before I was able to take a test for the third month, worship music was playing in our home and I could hardly sing along without my voice breaking with joy. Maxwell looked at me with wonder and I simply said, “Can you even imagine being in the presence of Christ?” My heart was already growing.
When it came time to test for the third month, I sprang out of bed and would you believe it – it was POSITIVE. It was so joyful, the beginning of something new for our family. Zack and I held our news close and enjoyed winking at each other very exaggeratedly, though none of our kids really knew why (or noticed).
Five babies. There has always been a lot of joy as we increase in wonder and anticipation over what’s to come with each new baby.
DECEMBER:
It didn’t take long for the familiar first-trimester symptoms to settle in. I ate saltine crackers for weeks and weeks and tried my best to entice the kids to cook dinner. (Because, you know, the smells.) It usually didn’t work, but at least I tried ;)
2023 –
JANUARY:
The second week of January burst forth with my first OB appointment. I was 11 weeks pregnant with baby #5, and our first ultrasound showed a strong heartbeat along with signs of a cyst on the baby’s spine. We were referred to a Maternal Fetal Medicine specialist in another town and set an appointment for later that month. While at that appointment, nothing out of the ordinary was seen, though our baby was moving around so much that the ultrasound tech couldn’t get a good look.
“Can you come back later next week,” they asked. Zack and I looked at each other and shrugged. “Of course,” I said.
FEBRUARY:
There are three things I remember most about this day. The weather was awfully blustery and cold, I was traveling alone for my follow-up appointment with Maternal Fetal Medicine, and the familiarity of family remains unmatched.
I had settled myself on the hospital bed for a third ultrasound. While there were a couple of silly things that happened that helped to pull my mind from dark places, I distinctly remember the MFM specialist finishing her time with the ultrasound and then placing her hand on my leg.
“Let’s go to another room where we can talk more comfortably,” she said quietly.
She grabbed a box of tissues, and I thought, “Yes, bring the whole box; I am a crier.”
Once she started talking, it took me a very long time to catch my breath. My mind was spiraling. It was all so unexpected. The room felt so small, and my pain felt way too big. And while I asked many questions, no matter which ones I asked I couldn’t succeed at calming my mind. The doctor didn’t have a lot of information about our baby (mostly because our baby was/is young gestationally), though she had plenty of information to share about the condition and the next steps to consider.
She desired for us to meet at her office downstate for a more thorough exam. I tenderly agreed.
My phone call to Zack after my appointment was reflective of our 15 years of marriage, which we’ll celebrate in June. He prayerfully led me through what I had just experienced, and we were in agreement we’d tell our children right away.
After my drive home, with the still-blustery weather, I opened the side door attached to our garage and walked in. I could hear my children’s voices near Zack’s and immediately started crying again.
“The queen is home,” the kids cheered together. Even Bauer howled over my arrival.
“How do we tell the kids our hard news,” I thought to myself. Well, we found a way, and the six of us were huddled on the couch together for a long time. I love their gentleness, awareness of emotion, knowledge of God, and kindness toward me. I wished for better circumstances, but when your husband and young children know how to minister to you — how can a mother not rejoice amidst her sorrows?
Many friends have asked how I’m doing or how they can pray, and for a few days I shared a little while saying, “This doesn’t feel like my life.”
But, this is my life, and it is no surprise to my Father. And so we want to share our story with you.
It is now two weeks later and my response to friends is, “I’m moving forward with a lot of faith and a little bit of fear, though I have to really work at controlling my fear.” On my own, this feels impossible to process. Because of Christ, I’m fully leaning on Him. He is my firm foundation.
What I know to be true today was true yesterday and stands true for tomorrow: the Lord God has me and my baby covered under His wings.
The floor in that small doctor’s office seemed like it was going to drop out on me, but I know my life is not built on breakable materials. God rescued me from living in fear from the day I called Him, “Savior.”
Here’s what we know:
- The doctor is seeing signs of spina bifida on our baby. They are still determining where the exposure is on his precious body, but they are hopeful it can be helped through surgery before I deliver him.
- Because of additional testing through bloodwork, we know our baby is a BOY! We have always found out our child’s gender at birth, but this feels like the right time to know so we can more personally pray for our child. A boy! We are elated :)
- Many upcoming MFM appointments await us in Ann Arbor, MI.
- We are hopeful for a successful surgery on our baby boy at 24 weeks gestation (early April). This, of course, has risk, however the success rate for the baby’s health (especially outside my womb upon delivery) is high and important. We are praying through all of this. I have moments where I’m very afraid and my stomach is in knots. Please pray against fear.
- If surgery is an option, my recovery requires a lot of rest as I need to remain in Ann Arbor through delivery (early April to late July).
Here’s how you can join us in prayer:
- Pray for miraculous healing in my womb which would cancel the need for in-utero surgery. Pray for complete healing on our baby’s body!
- Pray for our detailed 4-hour appointment on Monday, February 20th.
- Pray for peace as I carry our baby boy. Pray for my mind to remain fixed on Christ and not centered on fear.
- Pray for the doctors, surgeons, and genetic counselors to safely and accurately do their jobs well.
- Pray against any paralysis in our baby boy!
- Pray for my husband to be encouraged and strengthened.
- Pray for our four young children to feel seen and loved, and not be fearful of the future.
- Pray for Zack and me to have the strength to not look too far ahead — which causes us to worry.
- Above all, we pray for Christ to be glorified through our story.
Isaiah 48:17,
“This is what the Lord says— your Redeemer, the Holy One of Israel: “I am the Lord your God, who teaches you what is best for you, who directs you in the way you should go.”
Thank you, friends and family. We will update here as we know more.
xoxo, Maggie
This is hard news. Thank you for sharing this with those have loved watching your sweet family grow. Just today I used an old but still treasured Gussy tote from way back when. I love your heart for Jesus and admire the way you’ve intentionally ordered your loves.
Praying for you now as I sit waiting for a teenager to get home at 3 am. May God walk intimately with you all each step of this journey. Your faith is beautiful. ❤️
Karissa, thank you for your thoughtful comment. This is hard news. I know I am not alone as we pray for baby boy <3
Prayers of miracles and peace coming your way from the Zigas. ❤️ hugs to you ❤️
Ziga family, thank you for your thoughtful comment. It’s encouraging to see your name here. This is hard news… but I know we are not alone as we pray for baby boy <3
Praying for a miracle, sweet Whitley family! Love you guys!
Amanda, thank you for your loving words. This is hard news. I know we are not alone as we pray for healing for baby boy <3
Oh Maggie, thank you for sharing your heart so we can pray for you. You and your family and precious baby boy will be in my thoughts and prayers for sure.
Paige friend, thank you for your loving words. This is hard news. I know we are not alone as we pray for baby boy <3 Sharing our story has already provided me with healing.
Praying for you all and your upcoming appointment on the 20th! ❤️
Thank you, Heather. We felt your prayers! xoxo
Thank you for sharing your tender news with us, Maggie. Ever since 2012 I have felt a call to pray for you. I appreciate knowing how to pray and will continue to do so! Thank you for allowing us the opportunity to intercession on your behalf!
Janelle, please keep praying. Thank you for your thoughtful comment, it has meant so much to have prayer warriors surround us. xoxo
Praying for you and your family. Your appointment is on my calendar so I’m reminded to pray extra that day.
Sonnie, thank you for your loving words. We felt your prayers on Monday. I know we are not alone as we pray for baby boy, that is so encouraging <3
You are so loved … so held in prayer… so not alone. Holding you and your beautiful family in prayer, dearest Maggie
Ann friend, thank you for your kind words. This is hard news, but I know we are not alone as we pray for baby boy <3
I can only imagine how difficult this news was to hear. Praying for your family.
Stacey, it was truly awful, though we have never been without the hope of Christ. Thank you for your loving words. I know we are not alone as we pray for baby boy <3 Please keep praying.
Sending so much love and energy to your family, Maggie! Congrats on your baby Boy!!!
You’ll have a LOT of Ultrasounds coming up, regularly… its like having a part time job. I encourage you to cherish these as your first times getting to know his personality!! I had ultrasounds with Charlie and Lucy every week, and it was like our hangout time pre-labor… hope you feel this closeness with him too It really helps to ask for the same ultrasound tech each week… the caring increases ♥️
Love Leigh-Ann
Leigh-Ann friend, thank you for your loving words. This is very hard at times, though the extra ultrasounds are really special. <3
Thinking of you & your sweet boy – sending love and light to you both!
Thank you, Jenn! xoxo
Oh sweet Maggie – you have ALL my thoughts and prayers and wishes going with you. Sending you so much love and peace for Monday.
Deanna friend, thank you for your loving words and prayers. This is hard news, though I know we are not alone as we pray for baby boy <3 please keep praying
Praying for you and your family as you navigate these uncharted waters. I thank God that He has gone before you and is more than enough for everything you need. Believing that you will see Him move mightily and your family will grow and be strengthened in the days ahead! Hugs!!
Jodi friend, thank you for your special message and loving words. Thank you for your prayers. This is hard news, though I know we are not alone as we pray for baby boy <3 please keep praying
Oh Maggie, thanks for sharing this hard news. Will be praying you and your family! These scriptures have helped through the really hard times when I think I can’t do it anymore, hope they help you as well.
Isaiah 41:10
“Do not be aftaid, for I am with you. Do not be anxious, for I am you God. I will fortify you, yes, I will help you, I will really hold on to you with my right hand of righteousness”
2 Corinthians 1:3, 4
“Praised be the God and Father of our Lord Jesus Christ, the Father of tender mercies and the God of all comfort, who comforts us in all our trials so that we may be able to comfort others in any sort of trial with the comfort that we receive from God”
Sending you a BIG!
Lola friend, thank you for sharing Scripture and your loving words and prayers. I love the book of Isaiah <3 please keep praying! xoxo
Oh, you know I’ll pray to our Jehovah Rapha, the God that heals. Love you.
Tracey — yes, and I am so comforted that you’re praying alongside us. xoxo
To testify Gods goodness, my daughter was born with a tethered spinal cord unbeknownst to us. We found out when she was 3 weeks old. She had spinal surgery to repair the tether. She is almost two and is healed and whole. I’m praying for you. He is writing a beautiful story for you and your family.
Emily friend, thank you for your loving words and prayers. I am rejoicing with you over your daughter’s healing! <3 please keep praying for our family. xoxo
Dear Maggie, I will be praying for these things! Health concerns have a way of altering our lives – in hard but fruit-bearing ways. I have two friends who have children with spina bifida. If you would like to be connected with them, I would be happy to help with that. God knew about this baby long before you/we did, and we can trust His plans. Hugs!
Tasha friend, I can testify to that! God has pruned me in new ways, but it is for my good. Thank you for your kind comment and for joining us in prayer over our baby boy! xoxo
Oh Maggie. This news is so fresh and so tender right now. I’m praying that the Lord will hold you so close that when you look back on these days you will know without a doubt that he carried you through these deep waters. He knows all about it. He knows your precious son. He is nearer than your very breath and always is. Sending love to you, friend.
Shelly friend, thank you. Thank you for your encouragement and your prayers. I am praying in agreement with you! xoxo
Oh, Maggie. I’m so sorry. I have followed your story since your second little one and you were still in CA. I just wanted you to know I’m close by should you need anything. I live 18 minutes from UM Hospital Ann Arbor. Praying for you.
Melanie friend, thank you. There is so much on my mind. One large to-do is figuring out our housing April-July/Aug. We are looking for a furnished home or apartment while I recover in AA. If anything comes to mind, would you please let me know? Thank you again for your prayers. xoxo
Diagnosis day is life altering and terrifying. I honor the fear, grief and confusion you’re feeling. It’s real, it’s scary and it’s hard. I don’t know this little boy or what his life holds but I KNOW there is joy and beauty ahead. He’s already changing lives and perspectives and he hasn’t been born yet! I don’t say this lightly—God holds all of this, all the fear, love, this precious boy, your whole family. The world is not a random chaotic place but one held together by our loving God. Maggie—you and Zach are going to be shaped and molded in new ways and you’re going to discover a love so deep you never imagined. Your kids will have tender hearts and wisdom beyond their years. There is more good than bad, more fun than hard, more joy than sadness. Having a baby with any kind of disability is life altering and I wouldn’t change our journey one bit. Steve and I are here to talk, encourage, cry and love you guys. I would tell you it’s going to be okay but actually it’s going to be GREAT (and hard and beautiful and amazing) no matter what—whether your baby has a disability or is healed, it’s going to be great.
♥️ Love you friend.
Thank you so much, Lisa friend. I am comforted that God has already given us a community filled with prayer & support. He really is the perfect Father. xoxo
Maggie praying for you and baby just as you have prayed for us…only positive vibes
Thank you very much, Lisa friend. xoxo
Just stopped to pray for you and baby.
Maggie- I had a similar experience when pregnant with Cameron. They told us there will bubbles in his brain that might be a problem they couldn’t tell. We had many people praying for him through that period of time. It was a frightening time for us. We held on to Gods promises and felt Gods hands upon us. Cameron was born perfect and he has been our healthiest child to this point. I pray the same for your family!!
Thank you, Laura. We are seeing the evidence of Spina Bifida on ultrasound, and we are praying daily for God to work a miracle and heal his spine in-utero. We are balancing many emotions. God holds true to His promises, that is for sure! :)
Thank you, Bridget. We covet your prayers and know God hears them all. xx
Ohh Maggie! Long time follower here. I will be lifting you, Zack, the kids and this new sweet boy to our Heavenly Father! ❤️❤️❤️
Laura friend, thank you for your kind comment and for joining us in prayer over our baby boy! We are hopeful. xoxo
Maggie… my heart is with you. I’ve had the experience of being told ‘let’s go to another room where we can talk’ and being given a hard diagnosis for our precious newborn daughter… I remember the room, and the doctor’s face, and the weather, all so clearly. I know right now life is spinning and everything is uncertain and there’s so much grief mixed with hope mixed with fear mixed with joy and so many unknowns. I know you are wrapped in prayer as you walk this complicated path as a family. And I also know this – God knit your precious baby boy together just perfectly, for this particular story. Literally woven together by His hands. There is so much beauty ahead, mixed up in everything else. Your voice and heart have inspired me since the Gussy days, and I will continue to hold you in prayer. Sending so much love.
Sarah friend, I am rejoicing with you that God has knit our precious baby boy together just perfectly. We are filled with much hope! Thank you for your kind comment and for joining us in prayer over our baby! xoxo
I’ve been following you since you were just sewing cute zippered pouches ❤️ I’ve watched you grow and blossom as a mother and influencer as a Christian mom and wife. I’m honored you would share your prayer requests with us and have full trust that God has wild and infinite plans for your baby boy. Nothing is too difficult for Him. When I was pregnant with my subsequent baby after 2 losses, He specifically spoke a word to me in one of my darkest moments and that was ‘I will SUSTAIN you.’ (Sustain means to keep in existence) I’m praying He would sustain not only you, but also Zack, your babe, the kids, and all of the help your home will require as you focus on your miracle. God is good. He can be trusted. You’ve been given this gift of a miracle baby for a reason. Not everyone is cut out for a season like this ❤️
Oh Kae, thank you so much for all the kind words you wrote. More than that, thank you for joining is in faith and trust that God sustains all He makes. We believe that! I am deeply encouraged by your comment. Thank you! xoxo
Maggie my friend, I am so sorry to hear about your precious boy, but I also know this: your faith will carry you every single step! I am praying for you (and let my daughter Harper read this and she is, too!) and will continue to throughout the next months and weeks. God is so near, friend, and your little boy’s beautiful life story is just starting.
Oh Katie, thank you. Some moments feel very hard and dark, other times I feel free of burden. It’s an odd balancing act, and totally unpredictable. Thank you for your kind words and prayers – Harper, too. I am encouraged by the comments here, yours included. xoxo
Maggie!
Prayers as you continue with this upcoming visit. May God be by your side on this day and you feel his presence.
I love a dear boy who has spinabifida so very much. He is now 13 years old and walking and performing his normal day life. I pray your son will have the same results. Prayers for you r family. ❤️
Zelma friend, oh my – thank you for your encouraging & hopeful comment. We serve a God who loves deeply and does nothing by chance. I hold those truths close to my heart. xoxo
My prayers and thoughts are with you.
Thank you, thank you! xoxo
Maggie, I’m grateful that you posted such an honest post. Thank you for letting us all know exactly what your family needs right now. I will be thinking of you during this time and know your strength and love. There’s one thing that I’ve learned from being a special needs mom: mothers can do anything thanks to the love for their children. ❤️
Katie friend, I can testify to that! God has pruned me in important ways, and it is for my good. Thank you for your kind comment and for joining us in hope over our baby boy! xoxo
Thinking of you and your sweet family today. It’s so refreshing to know we can be yoked to our Way-maker, Peace Speaker, and Healer with strength and comfort for such a time as this. He is no more than a whisper away.
Sandy friend, AMEN! I am proclaiming these truths alongside you. Thank you for your prayers, please keep them coming. xoxo
I was just thinking about you recently. I must have missed the announcement- but congratulations on your sweet baby boy! Thank you for sharing your news and giving me the blessing of being able to join you in prayer! I’ll keep on praying as I remember you, baby, and your sweet family.
Oh Betsy, yes of course. We are so so happy to be a family of seven. Thank you Father for this new baby boy! And thank you, Betsy, for your prayers. They mean so much. xoxo
Maggie, Your faith and strong hope are so evident in what you have shared here…praying now and will continue to surround you with prayer for healing, wisdom, and comfort in the moments of fear and uncertainty. Ann Arbor has some of the best doctors and surgeons in the world! (I’m near Grand Rapids and have family and friends who have experienced the amazing care there!) He is going before you even now, preparing the way for you and your baby. Much love to you!
Paige friend, thank you for your loving words! I know we are not alone as we pray for baby boy <3 Sharing our story has already provided me with healing. Thank you for the prayers and encouragement, too. xoxo
My sister went through this with success. Her daughter is now 32 and has been perfectly healthy her entire life. She did have additional surgeries early in life which contributed to the correction. UofM hospitals also saved my son’s life at 6weeks old. He is now 38! Prayers to you for peace and joy!
I have a 19 year son with Spina Bifida. He is the youngest of 8. I’ve been where you are now and we have found such joy in the journey. Reach out if you would like to see how it might look down the road. It’s a different path but your faith will be strengthened and your community expanded. It’s going to be ok.
Beth
Loyale Matthias Massey- our SB boy.
BTW- He just played in the national Wheelchair Basketball Tournament this weekend. His team-Wichita Warriors took 9th place in their bracket. He is number 20
Lots of photos are posted on this FB Page.
https://www.facebook.com/profile.php?id=100070308550486
The world of disability is full of joy and beauty.
Thank you, Beth! When did you receive the diagnosis? Thank you for the encouraging comment :)
Maggie- just revisited this and realized that you replied to my comment months ago. I was about 18-20 weeks when he was diagnosed. And continue to be blessed by this son of ours. He is driving now, with hand controls and going to a transition program with our school system after graduating last spring. Feel free to reach out at any time-beth.tweet.massey@gmail.com
And…I just noticed that I put the wrong name of our Wheelchair basketball team. Its the Wichita Wildfire. We are actually at a tournament in OKC this weekend.
[…] to be able to slow down when really big things come up. Just this year we have endured as a family a hard diagnosis, considered pros & cons of prenatal surgery, relocated our family for the surgery, made it […]
I just came across your story today. God’s perfect love shows in your writing. He holds you and your beautiful family in His hands. You have blessed me in your journey. I’m praying for continued blessings for you as you continue this path.
Thank you so much, Judith. We are certainly being carried by the LORD Almighty… it’s such a comfort. xx